Palliative Care Family Conference

Difficulty: Intermediate
Domain: Medical
Subdomain: Pediatrics
Environment: Large Hospital

Region: Akron, Ohio, USA

Time Estimate:: 24 min.
Avg. Length per Line:: 8 sec.

Introductory Summary: Family conference with the Palliative Care Team to discuss end-of-life options. Their two-week old infant was born premature at twenty weeks in the neonatal intensive care unit.
Pediatric Palliative Care Definition: Pediatric Palliative Care offers specialized medical care for children with serious illnesses, including genetic disorders, cancer, prematurity, neurological disorders, and heart and lung conditions. Care centers on relieving the symptoms, pain, and stress of a serious illness and improving quality of life for both the child and the family. A specialized team provides support for emotional, psychological, practical, spiritual, educational, and developmental issues that may contribute to suffering or interfere with healing.

Disclaimer:: This text is an original work of fiction based on real scenarios. Any similarities between people or places are purely coincidental.

Participants

Abbr.	Role	Language(s)
Int	Interpreter	en-US es-US
F	Father	es-DO
M	Mother	es-DO
Ch	NICU Palliative Care Chaplain	en-US es-MX
NP	Nurse Practitioner	en-US
PP	Pediatric Palliative Care Physician	en-US
SW	Social Worker	en-US

Contributors

Author

John P. Shaklee

Co-Author

Leticia A. Martínez

Editors

Devin Gilbert

Yohana Imperio

Audio Engineer

Omar Mendoza

Voice Actors

Father: Arismendy Frica
Interpreter: Devin Gilbert
Nurse Practitioner: Delaney Johns
Social Worker: Skylar Lees
Pediatric Palliative Care Physician: Nathaniel Murphy
Mother: Mayelín Sabala Veras
NICU Palliative Care Chaplain: Giovanna Torres

Main Challenges: What with COVID restrictions, only two adults permitted in room. Other family members wait in the hallway. Masks muffle speech which intensifies interpreter’s need for concentration even more than usual.

Key Terminology and Vocabulary

English		español
---	pediatric palliative care physician	médico de cuidados paliativos pediátricos	---
---	nurse practitioner	enfermera especializada	---
---	social worker	asistente social	---
NICU	neonatal intensive care unit	unidad de cuidados intensivos neonatales	---
---	chaplain	capellana	capellán
---	healthcare	atención médica	---
ER	emergency room	sala de emergencias	urgencias
---	think straight	pensar con claridad	---
---	sedate	sedar	---
---	alleviate	aliviar	---
---	medication	medicamento	---
---	swollen	hinchado	---
---	providers	equipo médico	---
---	liver	hígado	---
---	tube	tubo	---
---	ventriculomegaly	ventriculomegalia	---
---	condition	afección	---
---	ventricle	ventrículo	---
---	excessive pressure	presión excesiva	---
---	long-term	a largo plazo	prolongado
---	neurological damage	daños neurológicos	---
---	brain	cerebro	---
---	brain center	centro cerebral	---
---	cerebrospinal fluid	líquido cefalorraquídeo	---
---	cavity	cavidad	---
---	chamber	cámara	---
bodily fluid	fluid	líquido	líquido corporal
---	nerve damage	daños nerviosos	---
---	outlook	perspectivas	pronóstico
---	speech	habla	---
---	motor activity	actividad motora	actividad motriz
---	crawl	gatear	---
---	acute liver failure	insuficiencia hepática aguda	---
---	discolored	descolorido	---
---	urine	orina	---
---	spontaneously	espontáneamente	---
---	inherit	heredar	---
---	pass away	fallecer	morir
---	stage of care	etapa de atención	---
---	teleconference	teleconferencia	---
---	update	actualizar	informar las novedades
---	keep updated	mantenerse al tanto	---
---	fighter	luchador	---
---	God bless you	que Dios los bendiga	---
---	gas card	tarjeta de gasolina	---
---	coupon	cupón	---
---	don’t hesitate to call	no duden en llamar	---
---	there’s no rush	no hay ningún apuro	---

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Supplementary Resources: Pediatric ventriculomegaly (Children's National); End-of-Life Care for Neonates: Assessing and Addressing Pain and Distressing Symptoms (Frontiers); Parent Involvement in End-of-Life Care and Decision Making in the Newborn Intensive Care Unit: An Integrative Review (PubMed Central); Pediatric Palliative Care (Akron Children's Hospital); Palliative care translation glossary (en-es) (ProZ); Terminology Resources (International Medical Interpreters Association); National Standards of Practice for Interpreters in Health Care (National Council on Interpreting in Health Care); A National Code of Ethics for Interpreters in Healthcare (National Council on Interpreting in Healthcare); Guide to Interpreter Positioning in Healthcare Settings (National Council on Interpreting in Healthcare)

Palliative Care Family Conference

Dialogue